World Leukodystrophy Alliance
OVERVIEW
LEUKODYSTROPHYALLIANCE.ORG TRAFFIC
Date Range
Date Range
Date Range
LEUKODYSTROPHYALLIANCE.ORG HISTORY
PERIOD
LINKS TO DOMAIN
Learn about the biology and symptoms of ALD. Find an ALDspecialist in your area. Join the ongoing efforts of ALD advocates. ALD Connect Patient Portal is coming soon - check back for updates! ALD Connect Annual Meeting will be held in Boston, MA Fall 2015. A guide for newly diagnosed patients and families. Learn More about ALD? .
Project is a national, community-based organization of volunteers whose mission is to promote awareness and facilitate support of parents caring for their children with special health care needs, and to enhance the Quality-of-Life for these special families. You can make a difference too for families of medically fragile children with disabilities! Learn about our available equipment and how you can donate equipment.
WHAT DOES LEUKODYSTROPHYALLIANCE.ORG LOOK LIKE?
CONTACTS
Dreambuilders Resources, LLC
Dean Suhr
21345 Miles Drive
West Linn, Oregon, 97068
US
LEUKODYSTROPHYALLIANCE.ORG SERVER
NAME SERVERS
BROWSER ICON
HTML TITLE
World Leukodystrophy AllianceDESCRIPTION
An alliance of leukodystrophy non-profit organizationsPARSED CONTENT
The website leukodystrophyalliance.org has the following in the web site, "We are a group of like-minded non-profit organizations with the goal of leveraging our resources to improve the quality of life of those effected by leukodystrophies by raising awareness and advancing treatment, care, and research." We viewed that the webpage also stated " We advocate for newborn screening legislation for all leukodystrophies." It also said " We are committed to raising awareness of the leukodystrophies. We strive to provide useful information to leukodystrophy patients and their families."SEEK SUBSEQUENT DOMAINS
Sorry it has been a while - I wanted to update with some new information. I have discovered the names of a couple of pieces of equipment I had heard of in passing, but could not investigate due to knowing nothing about it and therefore having no search terms. Most of my information is serendipitous in this way. During a feeding, air and stomach contents that would.
18q Syndrome with deficiency of myelin basic protein.
Hi, my name is Alexis. My only hope is medical research. Together, we can help support research. Take part in our forum.
Helping scientific research one donor at a time since 2007.
Fasen, oorzaak en incidentie van CML. Steeds even stil staan bij de dingen die zijn gebeurd en vooral bij de dingen die zo mooi en fijn zijn òm juist even bij stil te staan. Even diep adem halen, mijn ogen dicht en me beseffen hoeveel geluk ik heb. Ik wens jullie dat ook toe! Dit is onacceptabel weinig.